Birthdays have never much bothered me in the way they bother some people. I don't mind turning a year older as I have always believed that age doesn't really matter. It's only a number. (Of course I reserve the right to change my opinion on such matters when I turn 30! haha)
But seriously, getting a year older isn't what is bothering me. I am disturbed by the fact that my birthday has come and gone and I still can't see straight. Thinking back to mid-April when the vision problems began I remember thinking, "Well, certainly by July...by my birthday this will all be way behind me..." And here I am still right in the middle of Double-Vision Land.
It has been over 3 weeks since my appointment at Shepherd and the IVIG Dr. Thrower wants to put me on has not been scheduled or approved yet. And while I want to feel hopeful that the IVIG will help my vision, just like the Solu-Medrol was, this is only a guess. There is no guarantee that it will work either.
So then what happens? Plan C? We try a different drug? I would think we are starting to run out of medicines to try...I have read that when MS patients aren't responding to certain drugs they sometimes try things like Cytoxan, which is basically chemotherapy. That sure doesn't sound fun. While I am certain I could look equally as lovely with scarves wrapped around my head and/or sporting the Sinead look, who wants to go through feeling that bad? Yuck yuck yuck! I sure hope there is something else they can try on me. I am a good guinea pig! Bring on the Wonder Drugs!!!
It is all extremely frustrating and I want this IVIG Yesterday so I can know whether or not it will fix my stubborn brain and move on with my life. There's music to play, places to go, people to see...I got a lot of livin to do!
And while all of you are out there this weekend, reading the final installment of Harry Potter, my dear friend Angela (knowing my eyes were less than cooperative these days) bought it for me on audioCD. How often as an adult do you get the excuse to have someone read aloud to you? And I hear the gentlemen who reads it has different voices for each character!!! I am very excited!
Here's to hoping the next time I write I am receiving fabulous IVIG into my body. Who ever thought my birthday wish would be to have a needle stuck in my arm??? Life is pretty funny sometimes... :-)